An International Community
Membership & Local Support
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Please see our Constitution for further details.
All fully subscribed country members with their own constituted PWS Association pay an annual subscription fee based on the number of families in their membership. The subscription year runs from 1 January to 31 December.
How do you become a member of IPWSO? Click here
Your Membership Stories
Find out more about the stories, challenges and plans of PWS associations around the world all working for the same cause to bring support, services, help and awareness of PWS in their country.
If you wish to contact the delegate representative of any member list below; please contact us
Member countries are subscribed members with voting rights. Click the links to visit the local member website or social pages. All delegates can be contacted for help. To get in touch with delegates or for additional contact, help or support please let us know here.
Associate Member Countries
Associate Member Countries have professional and/or parent contacts who are working with people with PWS. All delegates can be contacted for help. If you wish to speak with a local representative please contact us here
Prader-Willi Association Hellas (no website)
Argentina - SPINE Foundation
USA - Ontario PWSA
Oman, Sultanate of
> Medical Care & Research
Get in touch and let us know how we can help you with any enquiry about Prader-Willi syndrome and how our organisation works.